Turning data into better healthcare: data for hemophilia
summary
Sets up FHIR connectivity for the HumanNet hemophilia registry, modeling lab results with LOINC, linking tests to patients, and hosting a standardized FHIR endpoint per hospital so setups are replicable. Maps EMR medication, patient and lab feeds, validates against registry rules and FHIR sdu-3, and runs a data transformer that preserves source structure. Result: multiple hospitals add datasets, automated delivery replaces most manual entry, but LOINC inconsistency and lab equipment changes force remapping.
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