Building a Standard Health Record for oncology using FHIR
summary
Project defines mCODE minimal common oncology data elements as a concise FHIR profile set and exports it from a single-source clinical model using a Simple modeling language to generate DSTU2 and R4 artifacts. Team produces roughly 25 core profiles (60 including lab variants), runs pilots at about ten sites with Cerner using a Compass SMART on FHIR app for shared decision cohorts, and pushes aggregated data to registries. Key blockers: proprietary AJCC staging codes leave empty value sets and terminology hosting/licensing complicates IG publishing.
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chapters (23)
- 0:00Intro
- 0:47Welcome
- 2:22The problem
- 7:26Collaboration
- 9:19Codex
- 12:30FHIR Collaborative
- 14:20MCode
- 15:36Bubble Diagram
- 17:28Data Elements
- 18:03Profiling
- 18:40Rethinking
- 20:20Tools
- 21:15Simple
- 23:18Language
- 25:57GitHub
- 26:38Simple Project
- 30:25Challenges
- 34:18Implementation Guide
- 34:50Data Dictionary
- 35:56Implementation
- 37:23Contact information
- 38:01Cancer Data Summit
- 39:51Are there any questions
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