The Biden Cancer Initiative
summary
Argues for turning cancer data into real-time usable information by forcing hospitals to stop hoarding records and flip the switch to export data as it’s created, using mCODE and FHIR; builds an oncology clinical trial information commons to match patients to trials; funds an assay to standardize response across 1,400 immunotherapy trials; cites a 15-minute lab result that took four days to reach a patient, a five-year lag on cancer data, and proposes no co-pays for cancer (about $1B, 38¢/month).
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chapters (9)
- 0:00Introduction and personal story
- 3:34Urgent data sharing problem
- 8:17Human informatics and standards
- 12:09Policy change and mCODE
- 13:33Patient navigation and clinical trials
- 15:24Access to care and co-pays
- 17:33Fire and data sharing solutions
- 20:46Practice until cannot get wrong
- 22:13Urgency and call to action
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