Invisible Conditions: From Awareness to Inclusion
summary
A multidisciplinary team built the website vulvodinia.online to spread accurate information about vulvodynia, a condition affecting about 16% of women but often unknown to patients and clinicians. The talk explains how the project connects accessibility and inclusivity through UX design, information architecture and user interviews with patients and professionals to prioritize content, improve access to care, reduce diagnostic delay, and overcome social taboos that hinder sharing and awareness.
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chapters (6)
- 0:00Accessibility Days
- 2:38Vulvodinia Online project
- 11:14Rosalia's story and impact
- 16:15Site research and goals
- 22:16Invisible pathologies beyond vulvodinia
- 24:24Q&A and support contacts
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