Privacy-Friendly Sharing of Health Data Using a Reference Architecture for Health Data Spaces
summary
Proposes a reference architecture and contract blueprint for Health Data Spaces that embeds privacy controls, implements it with the Eclipse Data Space Connector, and treats the patient as an active role with explicit rights like notification and opt‑out. Produces an ontology driving a structured contract (unique IDs, policies such as data minimization and a 90‑day deletion clause) and adds a novel update operation allowing removal of a subject’s data. Evaluates ontology against GDPR and EHDS with mixed coverage and calls for more regs and verification techniques.
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chapters (6)
- 0:00Introduction
- 1:53Health Data Spaces regulations
- 4:24Contracts for health data sharing
- 9:04Reference architecture for patients
- 13:27Evaluating the approach
- 16:13Conclusion
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