Building governance for health data spaces and infrastructures: interplay between General Data
summary
European Health Data Space will require an Article 50 secure processing environment backed by implementing acts and national/ISO-27k alignment; configurations range from federated nodes to a central processing node for when hospitals lack capacity. Practical challenges: compute-heavy tools (differential privacy, MPC, homomorphic encryption) strain availability and cause weekend/node-failure risk, consent rules clash with data-altruism, and anonymization is handled via two-layer anonymization plus risk analysis and logging. Planned experiments compare project-by-project consent with granular opt-outs plus ongoing transparency.
AI-written summary · about
chapters (15)
- 0:00Health data governance intro
- 1:11Legal collaboration in data spaces
- 2:18Secure processing under EU rules
- 4:48Implementing acts and standards
- 6:10EU health data with external providers
- 7:37National and EU data spaces
- 9:44Data space governance frameworks
- 12:42Risks in data spaces
- 14:06Federated processing challenges
- 17:00Player requirements and ethics
- 19:32New players and GDPR gaps
- 21:21Team expertise needs
- 22:02Data anonymization challenges
- 24:07Data Governance Act issues
- 26:36Q&A on security and consent
related talks
39mSecuring Personal Data in Common EU Data Spaces
01h 18mCommon EU Data Spaces: Fundamental Rights, Competition & Innovation Digital...
01h 17mSECONDARY USE OF PERSONAL DATA FOR (BIOMEDICAL) RESEARCH
04mPolitische Keynote "European Health Data Space"
32mDataspaces & Gaia-X: Potentials For Trustworthy, Secure and Privacy-preserving Data-sharing
01h 19mWhen Data Can’t Move but Insight Must
07mOpening Speech Day 2
01h 08mMULTI-PARTY DATA SHARING AND DATA SUBJECTS AS BENEFICIARIES: HOW TO ACCELERATE...