Leveraging Open Source Software to Assure Privacy of Health Information
summary
Company builds an open source personal health record system that scales to 3.5 million patients by ingesting CDA/CCD/CCR documents, parsing payloads into relational tables, and holding certified copies in a health record bank with strict account boundaries. Exchanges require patient-issued permissions, all transfers are encrypted at rest and in transit, and every access is audited; the deployment replaces a federated switching-point approach with a patient-mediated aggregation and successfully supports clinical research and national-scale pilots.
AI-written summary · about
chapters (18)
- 0:00Intro
- 0:22What is a personal health record
- 2:13Patient portal
- 3:20Dutch law
- 4:08Patients right of access
- 5:02Dutch electronic patient records system
- 6:03National switching point
- 7:11Shared longitudinal electronic health record
- 7:47Open Source Software
- 9:29Clinical Information
- 10:30Health Record Bank
- 11:19Accounts
- 12:12Encryption
- 12:56Availability
- 13:46Health Record
- 14:28Sharing and Coping
- 16:17Unauthorized Copying
- 16:35Screenshots
related talks
22mHow Open Source is Improving Health of the Poor
17mPrivacy-Friendly Sharing of Health Data Using a Reference Architecture for Health Data Spaces
52mThe $7 Billion Health Tech Gamble: Privacy & Innovation
01h 20mA learning health care system secondary use of health data in research (2)
08mOpen Source Developers Make Tech More Trustworthy
40mLessons Learned While Building a Privacy Operations Center at...
33mBuilding governance for health data spaces and infrastructures: interplay between General Data
30mOpen source for good: COVID-19 Responses
