The Privacy Tax: How tracking and hacking affect disabled people, and what we can do about it
summary
Surveillance ranges from CCTV and cookies to centralized health databases, and data-driven systems routinely classify disability in ways that increase risk; accessible tech like screen readers and always-on communication devices become attack surfaces and leak sensitive medical details. The talk shows how people with disabilities adopt specific mitigations, why paying a privacy tax (extra cost, reduced convenience or functionality) often fails, highlights 24/7 connected assistive devices as a vulnerability, and points to open-source tooling and engineering changes that reduce exposure.
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chapters (11)
- 0:00Introduction and context
- 2:01Surveillance and disability
- 6:03Tracking and identification
- 11:27Diagnostic non-consent
- 14:11Physical and social tracking
- 17:11Data security and policy
- 22:18Corporate data practices
- 26:50Insecure medical hardware
- 34:48The privacy tax framework
- 37:55Open source as a solution
- 42:20Empowerment and conclusion
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