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Keynote Speech

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2020 frames a push to reconcile individual privacy with big data by concrete policy steps and examples rather than platitudes. Federal action includes ONC final rules to end information blocking, the Exposure Notification Privacy Act to restrict contact tracing data to public health use and ban sale, and the Smart Watch Act to extend HIPAA-like protections to wearables. The case cited shows how predictive analytics and sold wearable fall data can raise insurance rates without consent.

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