Plenary: Consumer voices: Why interoperability matters

on YouTube ↗26m

" summary

Sequoia Project assembles a consumer workgroup of diverse patients and caregivers, collects video testimonials, and publishes a findings report showing pervasive failures: inaccessible imaging, portals that are unusable, paper workflows, medication and diagnosis errors, and real harms like family members texting pill bottles to an ER or missed second opinions. The group calls for a one unified portal with plain‑English results and patient‑directed sharing so people can access, understand, and send their records reliably.

AI-written summary · about

" chapters (7)

1. 0:00Introduction by e-patient Dave
2. 2:32Why interoperability matters
3. 7:15Patient stories on access challenges
4. 14:48Sharing health records struggles
5. 19:09Understanding and using health records
6. 22:39Call for patient-centric solutions
7. 24:26Closing and patient voices matter

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