Afternoon Session #2: Policies, Politics, Publics
Talkat Wrong at the Root: Racial Bias and the Tension Between Numbers and Words in Non-Internet Data · 2019-06-05..06-07·
summary
Panel documents concrete misuses and loose claims: commercial polygenic scores are sold to score embryos and compute national differences; ancestry ads claim athletes are “48% Scandinavian”; a landlord pilots a StoneLock facial system in a rent‑stabilized Brooklyn building and activists confront surveillance plus algorithmic misidentification; population stratification undermines portability of genetic predictors; companies (and Spotify/23andMe pipelines) enable downstream misuse; regulators vacillate after the 23andMe FDA decision, leaving social harms largely unaddressed. Prioritize if you want policy battles, real products, and regulatory gaps.
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chapters (13)
- 0:00Start
- 5:38A Social Justice Perspective to Human Bio Technologies
- 9:24Polygenic Scores
- 10:17Ancestry Tests
- 13:08Institute for Society in Genetics
- 16:14Collaborative Research Projects
- 18:31How Do We Make Our Research Less Ambiguous
- 28:05Iq Debate
- 29:34Rk Theory
- 37:05The Science and Business of Genetic Ancestry Testing
- 42:59Facial Recognition
- 1:04:54What Role Can Academic or Public Policy Institutions Play and Bringing the Correct Framework on Race and Racism to Developers
- 1:47:58There I Think that some of the Gaps in the Way That We Regulate Biomedical Innovation Are Telling and Are More like Well the Problems We Face in the World of Computer Science and Algorithms Are So for Example Medical Devices Are Regulated to Their as to Their Safety and Efficacy but Questions about Social Consequences and Effects Certainly Ethics and Values those Questions Are Not Considered in any Kind of Regulatory Oversight Right Now in the United States in Other Countries There Are some Little Ways You Can You Know smush those Questions in but Here the Fda by Law May Not Consider Anything beyond Safety and Efficacy and once the Thing the Device or the Drug Is Out in the World Then It's in the Doctor's Bailiwick and the Doctor Can Use It off-Label
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